How it Feels: A baby with Type 1 Diabetes (Part 1)

Hands up if, like us, your knowledge of diabetes (in all its different guises) is limited. Well, it’s currently Diabetes Week, so now’s your opportunity to understand it a little better. This incredible guest post will be split over two nights, with the second instalment due to be posted on Sunday evening. Mother Sider Claire … More How it Feels: A baby with Type 1 Diabetes (Part 1)

How it feels: To Have a Child with Life Threatening Allergies.

Yesterday marked the start of Allergy UK’s Allergy Awareness Week 2017.  Mother Sider Lindsay is a real inspiration to us, and to all parents dealing with the ignorance surrounding allergies. We’re not talking intolerances here, though they come with their own set of hurdles; we’re talking serious, scary, life-threatening allergies. Both her girls have them … More How it feels: To Have a Child with Life Threatening Allergies.

28.02.2017 World Rare Disease Day: Our Genetics Journey, Part 1.

This Tuesday is World Rare Disease Day. It’s a poignant one for my family and many others… From a young age, I’ve known that there was a possibility of me carrying Pelizaeus Merzbacher Disease (PMD), the condition that means the sufferer has no myelin that caused both my uncle and my brother to pass away in infancy. Similar … More 28.02.2017 World Rare Disease Day: Our Genetics Journey, Part 1.